Insights & stories

Discover a collection of expert insights and real-life stories to help you navigate your journey with graft-versus-host disease (GvHD). Hear from medical professionals who share their knowledge and perspectives, alongside personal stories from patients and caregivers.

Expert insights

How can patients become involved in clinical trials, and why is it important to capture their experience?

Know GvHD was pleased to speak to Mohamad Mohty, Hôpital Saint-Antoine and Sorbonne University, Paris, FR. We asked, How can patients become involved in clinical trials, and why is it important to capture their experience?

How do physicians decide which treatment to use in patients with GvHD?

Know GvHD was pleased to speak to Hildegard Greinix, Medical University of Vienna, Austria. We asked, How do physicians decide which treatment to use in patients with graft-versus-host disease (GvHD)?

$What is steroid-refractory GvHD, and how is it treated?$

What is steroid-refractory GvHD, and how is it treated?

Know GvHD was pleased to speak to Hildegard Greinix, Medical University of Vienna, Austria. We asked, What is steroid-refractory graft-versus-host disease (GvHD), and how is it treated?

What can patients expect after a GvHD diagnosis, and how can they manage the impact?

Know GvHD was pleased to speak to Mohamad Mohty, Hôpital Saint-Antoine and Sorbonne University, Paris, FR. We asked, What can patients expect after a GvHD diagnosis, and how can they manage the impact?

What strategies did you use to help deal with the news of your GvHD diagnosis?

Know GvHD was pleased to speak to Steven Jackson, US. We asked, Can you please share what strategies you used to help deal with the news of your GvHD diagnosis?

How has GvHD impacted your lifestyle?

Know GvHD was pleased to speak to Wilfred Emmanuel-Jones, UK, about how GvHD impacted his lifestyle.

What was your experience of GvHD treatment, and what were the most challenging parts of it?

Know GvHD was pleased to speak to Joanne Stobart, UK. We asked, What was your experience of GvHD treatment, and what were the most challenging parts of it?

Can you describe your treatment journey as a patient with GvHD?

Know GvHD was pleased to speak to Wilfred Emmanuel-Jones, UK, about his treatment journey as a patient with GvHD.

What advice would you give to someone who is about to start treatment for GvHD?

Know GvHD was pleased to speak to Joanne Stobart, UK. We asked, What advice would you give to someone who is about to start treatment for GvHD?

Have you experienced other complications due to treatments you received for GvHD?

Know GvHD was pleased to speak to Steven Jackson, US. We asked, Have you experienced other complications due to treatments you received for GvHD?

Real-life stories

Hear from others about their journey and experiences of living with graft-versus-host disease. Please do contact us if you would like to share your story.

Patient story | Steven Jackson

Steven Jackson shares his journey with acute myeloid leukemia and subsequent diagnosis of GvHD after an unrelated donor transplant. His story details his experiences with the symptoms of GvHD and treatment with photopheresis and phototherapy.

Patient story | Matea Meden

Matea Meden discusses her story with GvHD, which occurred after acute lymphoblastic leukemia relapse and subsequent treatment with an unrelated stem cell transplant. She outlines her experience with GvHD, including treatment with extracorporeal photopheresis (ECP) and immunosuppressants.

Patient story | Joanne Stobart

Joanne Stobart shares her experience with GvHD after a stem cell transplant for acute lymphoblastic leukemia. She explains the events leading to the diagnosis, how GvHD symptoms have affected her, and how her life has changed due to GvHD.

Patient story | Reem Jaas

Reem Jaas shares her experience with Hodgkin’s lymphoma and GvHD after transplant. She discusses her journey with recurrent GvHD, and how she has overcome the difficulties of living with the disease.