About us

Our vision and mission

Our vision is to aspire to facilitate and improve graft-versus-host disease (GvHD) knowledge worldwide and develop community-based initiatives to overcome current and future challenges. Our mission is to drive education and awareness of GvHD globally through community collaborations, while continuing to raise awareness of the resources and support currently available.


Our strategy

Know GvHD is an educational platform filled with helpful resources to ensure our audience is informed about GvHD.

Through digital platforms, educational programs, and community outreach, we aim to bridge knowledge gaps and ensure that patients, caregivers, and healthcare professionals have access to the latest information and best practices in GvHD management. We believe that by working together and sharing expertise, we can make a meaningful difference in the lives of those affected by GvHD.

We partner with patient advocates, societies, and members of our established GvHD Hub Steering Committee (our ambassadors) to ensure the education we provide incorporates the patient voice and guidance from healthcare professionals, which equips it to be as impactful as possible.

The format of the education includes disease information, patient stories, videos, and social media.

Drive education and awareness

Improve GvHD knowledge worldwide

Develop
community-based initiatives

Our ambassador group

We have a dedicated and highly experienced global ambassador group who meet regularly to steer and guide the initiative. This ambassador group consists of patients and caregivers, patient advocates, healthcare professionals, and industry representatives. Their responsibility is to propose awareness initiatives, provide concepts for support and education resources, share their experiences and learnings from advocacy heritage, and endorse materials before circulation among the GvHD community.

Amin Alousi

Amin Alousi

Physician

USA

Jenny Bandheim

Jenny Bandheim

Patient

Sweden

Hildegard Greinix

Hildegard Greinix

Physician

Austria

Reem Jaas

Reem Jaas

Patient

Palestine

Steven Jackson

Steven Jackson

Patient

USA

Matea Meden

Matea Meden

Patient

Croatia

Mohamad Mohty

Mohamad Mohty

Physician

France

Arnon Nagler

Arnon Nagler

Physician

Israel

Zinaida Peric

Zinaida Peric

Physician

Croatia

Bipin Savani

Bipin Savani

Physician

USA

Joanne Stobart

Joanne Stobart

Patient

UK

Robert Zeiser

Robert Zeiser

Physician

Germany

Society partners

Our network comprises member organizations across the world, which provide support, information, and resources on GvHD.

KBDCA
Cancer Support Community
Blodkreftforeningen
Hemato-onkologická společnost
The UK Photopheresis Society
Ellye