What does responding to treatment mean to you, and does this differ from a physician’s perspective?

Joanne Stobart, UK

Know GvHD was pleased to speak to Joanne Stobart, UK. We asked, What does responding to treatment mean to you, and have you ever felt that this differs from a physician’s perspective?

Joanne begins by talking about what responding to treatment for GvHD means to her, highlighting that this can be slow and unpredictable, and involves emotional and mental aspects as well as physical symptoms. She discusses how she has tracked her responses, for instance by taking photographs of her skin symptoms and keeping a record, and this has been useful in conversations with her physician, who may have a more structured, regimented approach. Joanne emphasizes the benefits of focusing on the gradual positive changes and how treatments are helping.

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